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Fulfill the many needs of polio survivors and are designed to advance understanding and awareness of post-polio syndrome (PPS).
While there is no definitive number of polio survivors in the U.S., it is estimated that 300,000 to 400,000 are currently, or at risk of, experiencing post-polio syndrome (PPS).
More than 60 people attended the first Nebraska Polio Survivors Association support group meeting in Omaha in the fall of 1984 (see our full history under NPSA Beginnings).
Founded by Nancy Baldwin Carter, a polio survivor and author, the organization was the first of its kind in the nation. Its goal was to help survivors and their families, as well as members of the medical community, understand post-polio syndrome and treatments.
NPSA’s newsletter, Gleanings, has been read by thousands in every state and numerous foreign countries. For over 40 years, NPSA has hosted conferences and seminars featuring national leaders. The organization participated in medical surveys and studies and had advocated for the rights of people with disabilities. We work to develop awareness of post-polio issues and possible approaches to effectively managing them to promote quality of life
Today, as the NPSA population ages, the organization continues to provide support and look for ways to remain relevant in serving survivors, caregivers and the broader community. While polio has been eradicated in the U.S. it is still a concern in several of countries.
In 2026, NPSA is embracing the theme “Looking Ahead Together,” while honoring its history. The organization continues its work and aims to share the stories of many who have led amazing lives of courage, achievement and resilience.